DETAIL OF THE EVENTS
Parkinson’s Support Group: Thursday, Jan 13th at 5 pm; Doctor Hanna’s PD Medicine Management
Philip Hanna, MD, FAAN, is the director of the Parkinson’s Disease and Movement Disorders Center at the Neuroscience Institute at JFK University Medical Center.
Dr. Hanna will discuss he various types of Parkinson’s Medications and their role in your treatment plan. There will be ample time for questions.
Philip A. Hanna, M.D., FAAN, is the director of the Parkinson’s Disease and Movement Disorders Center at the Neuroscience Institute at JFK University Medical Center, Edison, NJ and the Neurological Director for the Huntington’s Disease Unit at JFK Hartwyck at Cedar Brook, Plainfield, NJ. Dr. Hanna has many peer-reviewed journal publications as well as authored or co-authored several book chapters in the field. The JFK Neuroscience Movement Disorders section is active in several clinical trials (where Dr. Hanna has served as principal investigator), including as part of the international Parkinson’s Study Group and Huntington’s Study Group. He works closely with other neurological subspecialists in the fields of sleep medicine and neuro-ophthalmology as well as with our rehabilitation department physicians, physical,
speech and occupational therapists.
The link for all support groups is: https://us02web.zoom.us/j/2128260907
Newly Diagnosed/Young Onset Support Group: Thursday, Jan 20th at 5 pm*
In this meeting there is always engaging conversation about topics that the mentees want to know about. Our mentors are a group of determined and inspired people who keeps the conversation going!
Note that the Newly Diagnosed meetings are not just for PD “Newbies.” They can ALSO help anyone on their PD journey, including those who need a “refresher.” It’s an excellent opportunity for those having difficulties after several years of living with Parkinson’s to get back
on track with your exercise, therapy, or attitude. We may pair you up with a motivated PwP who will give you tips on exercise, therapy and how to put some spring back in your step! Please make every attempt to attend this meeting. You will find the atmosphere low-key but
enlightening, and you will find that you are not alone with your diagnosis!
Advice for the Newly Diagnosed: https://www.parkinson.org/Living-with-Parkinsons/ManagingParkinsons/Advice-for-the-Newly-Diagnosed
Read about Young Onset PD: https://www.parkinson.org/Understanding-Parkinsons/What-isParkinsons/Young-Onset-Parkinsons
You may join our Newly Diagnosed/Young Onset group by contacting me
(email@example.com) or Donna(firstname.lastname@example.org).
Care Partner Support Group: Monday, Jan 24th at 4:05 pm
Dear Care Partners, we absolutely need and want your participation at our Care Partners’ support groups. This is stuff that you won’t necessarily hear or talk about at the PwP (People with Parkinson’s) support groups. Please attend this meeting. You are very important to us and
to your PwP. Let us know how we can help!
The Parkinson’s Foundation has lots of great information about Care Partners. Click on this link
to find the Top 10 resources for Care Partners:
DBS Support Group: Monday, Jan 31st at 4:05 pm
Three of our support group regulars, all of whom have undergone DBS (Deep Brain Stimulation) surgery, will lead the discussion. They will comment on the symptoms that each had prior to the procedure, the decision process each went through, the procedure itself, the recovery time, and the improvements in their condition because of undergoing DBS. Please join this discussion if you are
thinking of having DBS surgery or have already had it!
The LOUD CROWD: Mondays at 3:00 pm and Thursdays at 11:00 am For graduates of Speak Out only
Mondays at 3:00 pm and Thursdays at 11:00 am
For graduates of Speak Out only!
ParkinSINGS: Wednesdays at 3:00 pm (Zoom ID 828 270 48926)
Wednesdays at 3:00 pm (Zoom ID 828 270 48926)
Rock Steady Boxing: Workouts on zoom Mondays, Wednesdays, and Fridays at JFK RSB also, zoom/in-person at Busacca’s Gym and in-person at Garwood
Workouts on zoom Mondays, Wednesdays, and Fridays at JFK RSB also, zoom/in-person at Busacca’s Gym and in-person at Garwood
Groovin’ with Carol: Thursdays at 1:30 pm in-person at Wall Municipal Building
Thursdays at 1:30 pm in-person at Wall Municipal Building
PD Mentor-Mentee Program:
PD Mentor-Mentee Program: Read about this Growing program at www.jfkpdadvocate.com
A Parkinson’s Social Event – Thursdays from 1:30 pm to 3:00 pm
Groovin’ on a Thursday Afternoon!
for People with Parkinson’s
A free social activity with gentle movement and speech exercises. Bring
your significant other!
Every Thursday in the basement of the Wall Municipal Building!
Coffee at 1:30, Program from 2:00-2:45.
Have some coffee and chat with your friends, then join a supplemental exercise designed
to enhance your therapies. The program will change weekly. What will it be this
week? Singing? A joke-telling contest? Gentle Tai Chi exercises? Groovin’ dance
steps? Come and find out!
Groovin’ on a Thursday Afternoon is sponsored by Cornerstone Speech and
Language, SOAR Physical Therapy, and Busacca Fitness
and is free to the public.
I can’t imagine anything that’s better
The world is ours whenever we’re together
There ain’t a place I’d like to be instead of Groovin
Parkinson’s Foundation HelpLine and Website
The Parkinson’s Foundation’s HelpLine at 1-800-473-4636 is always a great resource for all PDrelated questions and resources. The Parkinson’s Foundation Website is at: https://www.parkinson.org
Get the Latest Parkinson’s News from JFK University Medical Center
PDUpdates will be e-mailed directly to you. All you need to do is send your name and your e-mail address to email@example.com indicating you would like to receive your own copy when it is published. As noted below, your information will remain confidential, and you may opt out at any time.
JFK’s Parkinson’s Disease Center
Located in Edison, New Jersey, the JFK Parkinson’s Disease Center is comprised of the JFK Neuroscience Institute and the JFK Johnson Rehabilitation Institute. Both Institutes are uniquely qualified to offer comprehensive services in a single location and work collaboratively to accurately diagnose PD and to create a care plan for each individual patient.
READ MORE: https://www.jfkmc.org/services/the-neuroscience-institute/movementdisorders/parkinsons-disease-program/
Our New Website
The JFK Parkinson’s Advocate Parkinson’s disease is one of the most complicated of all known diseases. It is hoped that this website will make it more convenient for those who feel alone and afraid with their diagnosis to understand that they have the support of many people like themselves who will help them to get through life with hope and fellowship. The website is intended to support all aspects of the Hackensack Meridian Health Network by supplementing the ongoing efforts of its physicians, clinicians, and patient advocates and by providing a convenient resource for all People with Parkinson’s disease and those who care about them.
Did You Know?
1. People with Parkinson’s need to hydrate themselves more frequently than those without PD?
Find Out Why at: https://www.neurologysolutions.com/parkinsons-disease/dehydration-inparkinsons-risks-tips-2/
2. The cause of Parkinson’s is still unknown and there is no cure. What causes Parkinson’s remains largely unknown. Genetics cause about 10 to 15 percent of all Parkinson’s. The other 85 to 90 percent of cases are classified as sporadic (or occasional). Although there is no cure, treatment options vary and include medications and surgery.
3. No two people have the same exact symptoms. The progression of symptoms is often a bit different from one person to another due to the diversity of the disease. People with PD may experience: tremor (mainly at rest); slowness of movements (bradykinesia); limb rigidity; gait and balance problems.
4. Small Handwriting and loss of smell are early signs of Parkinson’s. A change in handwriting, specifically handwriting that’s gotten smaller over time or crowded, are an early indicator of PD. Another common early sign is the loss of smell of foods like bananas, dill pickles and licorice.
5. The Parkinson’s community is strong. The Parkinson’s Foundation is here for our global Parkinson’s community — that includes family members and caregivers. The Foundation hosts Moving Day walks across the nation and also provides additional ways to get involved— donate, volunteer, host a fundraiser, join PD Conversations or advocate.
If you answered four out of five questions correctly, you are qualified to be a Parkinson’s Mentor. There are many Newly Diagnosed PwPs that can really use your advice and friendship! Contact John Kolaya or Donna Mastropolo and join our Newly Diagnosed Group.
Coming Soon on the JFK Parkinson’s Website
• Your Parkinson’s Care Team
• Parkinson’s and Nutrition
• Dance for PD
• Drum Circles and Music
• Completion of the Index and Glossary of PD terms
• More Doctors’ Corner Articles
• What would you like to see on the website? – Contact me with your ideas and